Health

Crowdsourcing to Fund Rare Disease Research

July 7, 2019   ·   0 Comments

SOURCES:

Nicole Henwood, MD, president and CEO, NF2 BioSolutions, West Chester, PA.

UpToDate: “Neurofibromatosis type 2.”

National Institutes of Health: “Rare Disease Clinical Research Network.”

Lancet: “Spotlight on Rare Diseases.”

National Institutes of Health: “FAQs About Rare Diseases.”

University of California, Davis: “What is Translational Research?”

National Organization for Rare Disorders: “Member Snapshot.”

National Institutes of Health: “What is Gene Therapy?”

NF2 BioSolutions: “FAQs.”

Amber Salzman PhD, president and CEO, Ohana Biosciences, Merion Station, PA.

Gary Brenner, MD, PhD, director, Pain Medicine Fellowship, Massachusetts General Hospital; associate professor, Harvard Medical School.

Cancer Gene Therapy: “Schwannoma gene therapy by adeno-associated virus delivery of the pore-forming protein Gasdermin-D.”

University of California, Davis: “What is Translational Research?”

Chris Coburn, chief innovation officer, Partners HealthCare, Cambridge, MA.

Peg Brivanlou, PhD, partner, King & Spalding, New York.

Kaiser Health News: “The High Cost of Hope: When The Parallel Interests of Pharma and Families Collide.”

The Scientist: “The Challenges of Rare-Disease Research.”

WebMD Health





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